Global Genes® is one of the leading rare disease patient advocacy organizations in the world. This non-profit organization has been promoting the needs of the rare disease community since 2009, and has since grown to over 500 global organizations.
Canadian Association for Rare Disorders
CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.
Educational Overviews About PLGD
The Genetics Home Reference Site at the National Institutes of Health Genetics Home Reference Site offers helpful information on the condition of PLGD and the involvement of the PLG gene.
National Organization for Rare Disorders
NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
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